Відео

Going gluten free, sleeping with the head of the bed elevated, and taking Taurine helps a lot.

Thank you for your time and energy and the opportunity to learn more about this terrifying disease. I began having seizures in2016 and am now even more afraid of the meds "benzos". Which is worse?

Specific reason I don't wear a Med alert bracelet? I don't know whare/ how to get one!

It good to have a planned pregnancy talking with your spouse and doctor

This was so helpful as an epileptic

I'm a bit late but I do have some questions and info about my past that might help. general info: I have nocturnal seizures that, as far as we know started at 18, I'm 29 now. My father has grand mal seizures that started when he was 18. I was told my left frontal had the most activity in a test and it was later on said to be centrencephalic. Along with the seizures I sleep walk. I also have some type of aphasia. past: stayed up late constantly, various common drug use including psychedelics from 14-18 years old, and near death experiences as a child. questions I've already asked my neurologist that haven't been answered or always forget to ask: I've been told my aphasia came from the seizures, will it get worse and is there something similar to that for reading? There are short instances where I feel like I have dyslexia now. Every time I tried melatonin I would have a seizure. If melatonin was the reason for the seizures, why would that be? overload maybe? plus if I can't take that what would be safe to take? Would nightmares and or stress activate seizures since both also activate panic? Why would left frontal get changed to centrencephalic? I didn't sleep walk before the seizures. The sleep walking was ridiculous. There were times where I'd wake up fully clothed at work. Would the seizures I have bring the sleep walking about or would stress be the more likely cause? (Don't worry the sleep walking stopped after being medicated and I have things to stop me if it were to happen again).

I have a deep sleep seizure Night majority even if i sleep in day once it was happen How to overcome from this

Grief can affect your heart and if you stuff your feelings and problems deep down inside like a trash compactor, it manifests itself physically into these seizures. I can explain it better!

It’s all mental and meds are not necessary. You do not treat a mental suppression problem with mental suppression drugs! It’s a waste. Please start sending patients to an exposure therapist!

They don’t understand what I understand about these seizures and they can’t give you the results that I can. I am already an expert on mental suppression and I can help PTSD symptoms using hypnosis.

If you have PNES, please see a licensed therapist who specializes in exposure therapy or you can ask me!

These seizures are from mental suppression across the board no matter what is causing it. My data and methods speaks for itself.

I am from Michigan and I have been studying PNES for years now and I have constructed new ways of exposure therapy that cures these seizures.

Is this the only video with the doctors from that day speaking?

I found it very useful; Thank you.

"promo sm" 💪

I had my first nocturnal seizure when I was 26. I was put on Dilantin and slowly was weaned off of it after 2 years. I then had another seizure. I was on Dilantin for 20 years and purposely did not have children because Dilantin was known for causing birth defects. Every EEG after my first one showed normal brain function. I was told I had seizure disorders, not epilepsy. I also lived in a very old house with a lot of dust. And I was in a very stressful marriage. I divorced, moved out of state, and slowly weaned myself off of the Dilantin. I am now 69 years old, happily remarried, and haven’t had a seizure in over 30 years. I always wondered if my nocturnal seizures were from the dust in the older home, perhaps from the air ducts not being clean, and the stress from an unhappy marriage.

I have post ischemic stroke epilepsy. I’m on 2000 mg a day plus 150 of limictal. Auras not controlled. Effecting my weight poorly.

Vac ci ne damage fu#k the government

Thank you

Video watching . From #Indian side of . #Kashmir #India . . # 🇸🇦 🇵🇰 🇮🇳 🥰

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Good video, thanks. I have epilepsy, they thought I was having PNES for a long time, and then out of chance when I was having an EEG in the emerge one day I had an epileptiform seizure my neurologist could see and I got a phone call later that day or the next day telling me I had epilepsy... and that was such a huge relief (as ridiculous at that sounds at this point) that there was finally something that could explain why I was having so many seizures for at least a year at that point. Epilepsy sucks for sure, but my seizures are pretty under control now after trying out so many different meds and combinations of them, I take Lamotrigine and Lacosimide... I don't have big tonic clonic ones anymore which is good, and I only have partial or complex partial ones once a month basically one day a month (usually at the beginning of the month) Ill have a bad day where I have a bunch in clusters throughout the day. Still hard for my neurologist to explain for sure, and ive spent one session in a monitoring unit, they took me off all my meds and I only had two of the smallest ones ever that I didnt even notice... so that wasnt effective. Still on the waiting list to go into one again. I wish everyone else out there suffering from epilepsy the best life moving forward.

I'm 50. I was diagnosed with nocturnal epilepsy about 13 years ago. After going without for 11 years, last February and just last week, I had them. I recall the postictal from last year. I thought it was bad. The one I had last week was much worse. Every muscle in my body from head to toe was sore, headache, body felt heavy when I walked, balance issues, weird sensation in the front of my head/mind. These symptoms lasted until this past Tuesday. If someone here wants to study me, please do.

Are there permanent cures to nocturnal seizures?

Beginning at age 50 okay?

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this guy is a moron, he doesn't know that a lot of the so called side effects of cannabis are made up? It didn't occur to him that a racist "reefer madness" campaign that sought to put thousands of black people in jail wasn't interested in the truth of cannabis or whether or not people with epilepsy were taking it which they were at the time. No, cannabis doesn't cause problems with learning and memory. I've used it for years for epilepsy, I've never had a problem with learning or memory. I'm either smarter than Einstein if not for the wicked weed, or you can count it interfering with learning and memory as part of reefer madness.

Thank you sharing your wonderful experiences ❤💕🙏life living with epilepsy have epilepsy am older my heart goes out your families and others it's not easy 😢hard it's a journey since found out epilepsy very Strong your People in inspiring 💙❤God bless ❤💙All AMEN

There may also be jobs you really want to work in like gardening for the city but they require a driver's license. No exceptions because they may need you to drive trucks weather you're actually guaranteed to or not.

It's tough when you don't fit under the threshold for SSI but you're still having seizures that can pop up unexpectedly and put you on the shelf for 3 or more days. May go 5 months without having one, might go a few weeks. But the unpredictability makes it inconsistent so you don't qualify.

Mine I believe always start at the bed. A commonality is I always laid down with a lot of milk chocolate. I was hospitalized and put on Kepra. Came home and seized. As well after consuming cannabis for 50 years I had slowed way down on smoking. The neurologist said High’s and lows of cannabis can be a trigger. So I have just been using a cannabis infused olive oil. Thank God so far on just CBD I have been OK. Peace be with you all.

So well presented. Dominic’s Aunt Sally

What are the significant differences between an epileptologist and neurologist? We’ve been seeing a pediatric neurologist for our son for the past 2 years, but are there benefits to seeing an epileptologist instead or in addition to?

I'd love to trigger someone's photosensitive epilepsy just so I can look he/she's dancing.

How can I get a watch that detect seizures

I'm from Manipur, India. I've been suffering from nocturnal seizure, I'm also a sleep walker in my childhood days. My first time seizure experience was in 2016, 2nd time is 2017,and 3rd in Dec 2021. My doctor (neurologist) gives some medications i.e topiramate and levetiracetam since 2016 sometimes lowered the medications milligrams. That control from seizure. But I can't stand or walk for a long time, due to my back pain,my doctor said it's because of my seizure, sometimes I use painkiller to lower my sore in back. Please give me some advice/tips to get rid of this back pain. 🙏🙏🙏

A really good video except for where she tried to say keto was in the bible

I've been diagnosed with Idiopathic Generalized Epilepsy with Phantom Absences, what is the best anti-seizure meds to take? I'm 70 years old & also have essential tremors

Thank you for this valuable resource. I'm reviewing my literature review #PHD

I was diagnosed w frontal nocturnal seizures about 6 years ago. Was under control using lamotragiene 100mg er for 5 years. As of a year ago i started to feel super tired every day. No change in diet or exercise ( 27 years old 205lbs 6ft). The last 3 months i have been wetting the bed 1-2 times a month. Assuming this was a seizure i went to neurologist. He order blood work and came back at 1 for my lamotragiene level. He doubled my dose and i continue to have these bed wetting and extreme tiredness. Im trying to seek 2nd opinions but its impossible to get an appt. Im terrified by sudep and want to get this figured out. If you can help i would appreciate

I have a venous malformation that is suspected to be the cause of these N/S. My night seizures are triggered by high stress in my life. Recently I lowered my medication and had a seizure during the day - with no added stress in my life at the time. Most calm day, not a care in the world. I know there's not a neurologists out there that can figure out why it happened other than my brain is now dependent on medication.

My grandaughter who 16 she suffers from non eliptic sezuries they say it do with her having FND but no ones wants to help her here in uk

I believe that it should be a crime to provoking someone who suffers from epilepsy disorder to go into a episode because no a day's the police system only knows of being high on illegal drugs and are quick to assume that someone who has epilepsy are on a oxycodone and zanex or molly high when it's not that at all. They need legal protection as well as any other person.

He's the best.

I have tested many CBD oils. I think the CBD from Weedborn is the absolute best.

It's good to see Weedborn have new CBD products that will save me money and energy to heal myself.

Thank you so much for providing this educational video. It has been so helpful regarding a medical condition that can be so agonizing and medical doctors and hospitals that lack knowledge, compassion, and medical training to identify, diagnose and treat people suffering with PNES! GOD Bless you all!🙏🏾

I’ve had 5 seizures back to back in my sleep non provoked. ,, seizure free for 4 years,,,, should I still be on my medication? Lemotrigen ?